Andrea is a child 12 years old affected by a rare and incurable
pathology at the retinas (eyes). The name of this pathology is "Best"
and regards the progressive and unstoppable destruction of the macular
area of the retina.
He will became blind in few years. Just now he is almost blind in the
left eye and he has got only 4/10 diopters in the right eye. We think is
a terrible condition, and up above is an ineluctable and dramatic
destiny.
We are looking for any kind of help by every ophthalmologist specialist
(and not) who could add any interesting information about this
pathology. At the moment infact, it seems nobody knows how and why this
pathology begins (all we know is that it could be a genetic or infective
issue). And more, nobody knows how treat this sickness and up above how
make stop its evolution.
If you have every kind of help (scientific pubblications, names and
addresses of ophthalmologist specialists and university professors,
names and addresses of researches ophthalmology laboratories which are
working on the issue, or names and addresses of people affected by the
same phatology)...
Please write us by email to archidea@tin.it
Or send your informations by post to:
Lorenzo Puleo - via G. Washington, 80 - 20146 Milano, ITALY
Thank you and regards, Lorenzo Puleo